The family has so far managed to raise £50,000 of their £250,000 goal.
Sarah said Teddy’s illness had also affected his younger brother Joey, who was born two months premature is and now 18 months old.
“He’s barely known life with his mum and dad at home,” Sarah said, as they spend so much time at hospitals.
Sarah said her training had, in some ways, helped her cope, but also meant she knows “what that means in reality… the statistics we’re facing… the chances of surviving”.
“I’ve been caring for sick children for most of my working life,” she said.
“I, as a student, gave a family almost identical news when I was training 20 years ago.
“It’s uncanny the resemblance to this particular situation. To be stood in that cubicle on the ward that day, to receive that news from a student nurse, a qualified nurse and a doctor, it just felt like an out of body experience.
“I wouldn’t wish this past 12 months on anyone.”
